This is not so much a reply as joining your request for information. My uncle and his daughter both have it and a specific gene is an identifiesd cause in threir case. My grandma had MS, my aunt has Lupus, and I have Neuromyelitis Optica. should my mom & i get tested ?" Search the world's information, including webpages, images, videos and more. My father died in 1977 of ALS, his brother (my uncle) in 1975, and now this year my aunt (my father's sister) has been diagnosed with ALS. "als question my grandmother was diagnosed with bulbar als in august 2015. she's the only one in our family to have it. My aunt had a feeling, got out of bed, and it was right where she thought. Google has many special features to help you find exactly what you're looking for. My sister drove home. As far as info, I'm doing the same as you, searching the net for answers. anon92506 June 28, 2010 . Currently the best tool to distinguish between SALS and FALS is the family history. Veterans are twice as likely to get ALS, and as a result the military is losing out on a lot of human capital and the VA is paying these exorbitant care fees. My sister turned right around. Find your yodel. My sister shot her first archery deer at my aunt's place. Best wishes for your uncle. Familial ALS is very rare; only about 10% of all ALS cases are familial. If your maternal grandmother and mother had ALS, what are the chances that the next generation will get it (mine)? I, too, wonder about my chances and the chances of my … A simple way to think about familial vs. sporadic ALS: if more than one member of your family has had ALS, then it is very likely that you belong to a fALS family. Discover more every day. My niece is 7 and only shoots a BB gun at this point, but she wanted to go out with her mom. Well, at the end of my visit with my physician, after telling him about my twitches, arm and occasional difficulty swallowing, (which I've had for well over a year) oh, and my reflexes were a bit high,he said, I'm 99% certain its the stress and the thyroid, but it could also be ALS. My focus is on getting the Department of Defense and Veterans Affairs (VA) to see the cost benefit of [ALS research]. Take care. We live in PA where we do get a lot of sunshine. My dad has always been active and pretty much a picture of health. Four out of 6 of my siblings have MS, and my mother died from ALS. Not a great shot; my sister, uncle, and dad looked for hours. I was diagnosed a year after a maternal cousin was diagnosed with MS. My cousin’s mom had severe RA, and my mom’s fraternal twin has Lupus. It was delightful to see my fellow resident @The Home, Uncle Peter remembers my friend Puan Sri N. I was emotionally touched when I saw him so jovial , smiling and laughing as we listened to the voice message from Puan Sri N, a reply to his video message sent earlier to … The type of ALS that doesn’t run in families is often called “sporadic ALS”. Dear Amy: My wife’s sister moved away from our town last summer, relocating across the country to be with her grown son and his family — over 1,000 miles away. The remaining 10% of people with ALS have a family member with ALS, and this is referred to as familial ALS (FALS). News, email and search are just the beginning. My grandma had MS, and my mother died from ALS information, including webpages, images videos... Had a feeling, got out of bed, and I have Neuromyelitis Optica type of ALS that doesn t! ; my sister shot her first archery deer at my aunt 's place it ( mine ) the family.! With her mom much a reply as joining your request for information that! 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